Friday, January 2, 2009

Update 1/2

Things are slowly improving here at home. Eli is starting to talk and smile for us again. Feeding is going good and he seems to be tolerating the feeding tube. He is now getting 28 ounces of formula a day, which is a major improvement on what he was getting when we were fighting to feed him. He has been visited by many friends and family and we have had some really great support. My mom and dad are being extremely helpful and my brother will be here tonight. His aunts, uncle, and cousin have been by to see him and give him their love and support. Many of our friends came by the hospital and several have already been to our house. We need all the support we can get in this difficult time, so I thank everyone for helping us stand strong.

It looks like we will be taking him back to the doctor on Jan 12th. We will be going to the C.H.O.S.E.N. clinic here in Houston. They will help us coordinate all the specialist visits and make sure any recommended treatments are in line with our wishes for him. We are still praying hard that he overcomes this and the SMA test is negative.

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