12/31 We are HOME

We are finally home from the hospital. It took a lot of me being very persistent and sometimes pretty grumpy, but we are home. We still have no diagnosis; they did send the SMA test off 2 days ago, so now we wait on that to come back. We asked that they hold off on any other testing for now. They poked and examined him so much yesterday that he had a horrible night and wasn't able to calm down and sleep. It was a miserable day for all of us and we were ready to get out of the hospital. Eli was not the same happy baby in that hospital that he was at home and I had had enough of seeing him like that. I don't know where we go from here, but he needed a break from doctors and nurses. He has the feeding tube in and we now able to feed him at home. Keep praying.