Wednesday, December 29, 2010

Two years ago today we first heard those three words.   Spinal Muscular Atrophy.    

We had no idea our beautiful son would die less than three weeks later.

Sunday, December 19, 2010


I had to share some pictures of my amazing birthday present.   My friend Sara makes the most wonderful cakes and she stopped by today with this lovely creation.   I thought she was making me one of the ugly cakes from Cake Wrecks, but nope, I got the prettiest Barbie EVER!    I never got a Barbie cake as a little girl and I must say, this cake made it worth the wait!   :)

I'm sure she has no idea how much it really means to me.   For most of my life, I have been the giver.   I am the person who always makes sure everyone else has a cake or a gift or is thought of on their special day.   Usually that means that on my day, I get a bunch of apologies that people didn't have time or something came up and they didn't get to do anything.    But, every now and then a special friend or family member surprises me and does something that really puts some sunshine into my day.   Sara has been that special person not only on my birthday, but over and over again day in and day out.  She only met Eli once and we only worked together a few months, but she truly loves me and does so much for me and for SMA.   I don't know how many hours she worked on this cake, but I know she didn't get much sleep last night.    She is awesome and I am so very lucky to get to call her my friend.