Friday, February 27, 2009
Baby Eli Day: March 7th
I was looking at the ants in my yard yesterday and seeing the huge mounds they manage to create by working together. Why can't we do that too?
On March 7th, please consider making a small donation to SMA research by sacrificing something in your life that day. Maybe instead of grabbing a coffee at Starbucks, you brew it at home and send the $5; or maybe you and your family stay home for dinner and donate the $50 you would have spent. It could even be something as small as not picking up that pack of gum at the checkout counter and donating that $1 you would have spent. Many people doing small things can make a difference!
Please consider doing this for Eli and all the other kids who are no longer with us because the research has not been funded enough to find a cure.
Thank you.
Rita & Jason
Here is the link of different ways to donate:
http://www.fightsma.org/index.php?make_a_contribution
If you would like to make a contribution by check, please make it payable to "FightSMA" and mail it to: FightSMA, 1807 Libbie Avenue,Suite 104, Richmond, Virginia 23226.
On a separate sheet of paper, please include:
Your Full Name
Mailing Address
Email Address
Phone Number
How you learned about FightSMA
If the gift is in honor or memory of anyone and if so, the contact information of the person who should be notified of the gift
Another option is a donation the wonderful organization set up by my new friend Laurie who also lost her little man to SMA. She has been such a help for me during all of this, so I would love for some of the donations to go to Marshall's Miles.
http://www.marshallpotter.com/donations.php
Marshall's Miles
c/o Southbridge Savings Bank
82 Worcester Road
Webster, MA 01570
Please pass this on to as many people as you can... Send it to your friends on FB, put up a flyer, or just send an email. This is so important to me and I appreciate anyone willing to help out.
You can also go sign the petition to cure SMA if you just want to do something simple...
http://www.petitiontocuresma.com/
Spinal Muscular Atrophy is an inherited genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
SMA is the #1 genetic killer of children under the age of 2.
SMA is estimated to occur in nearly 1 out of every 6,000 births.
The gene mutation that causes SMA is carried by 1 in every 40 people or nearly 7.5 million Americans.
There is currently no treatment and no cure, but the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS)have selected SMA as the disease closest to treatment of more than 600 neurological disorders.
Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure.
http://www.facebook.com/event.php?eid=75496011507
Thursday, February 26, 2009
The Club
In January, 1987, my husband and I became members of a very exclusive club. We had been only vaguely aware of its existence, and we thought that surely a chapter in a city the size of ours wouldn't have many members.
We had seen a few people who belonged to the club, but we didn't seem to have anything in common with them, so we didn't really get to know them. Occasionally, we read stories in the newspaper about new members being initiated into the club, but it didn't seem likely that we would ever be eligible to join, so we paid no attention.
The price of membership is so dear that we couldn't imagine being a part of the club. We must have realized in the backs of our minds that people didn't choose to join and pay the dues--it was done for them somehow. In fact, no one really has any idea of how members are selected. There are a lot of theories; but much of the time, the theories come from non-members who don't understand much about the situation.
The "club" we are now in (although it is not an organized group), is known as "bereaved parents." The cost of our membership was the life of our son; and we, like all other members, have no idea why we were selected for membership.
No one wants to be in this club. Even now, months afterward, inside our hearts and minds we continue to fight membership, but there is no resigning from it. It is an automatic lifetime membership. There was no way to avoid it--we did the best we could to keep our son safe. For fourteen years, we guided him through dangers, only to have him die in a seemingly minor auto accident. Though we lay awake night after night, and think of it day after day, there is no answer as to why we have been thrust into this select group. We hate it and we cry out in protest, but there is no way to change it.
We have learned a lot since our membership began. We now understand much about the other members. In fact, we seek to be with them, to have regular get-togethers, to discuss our membership, and try to understand its value.
Sometimes, those outside the club are afraid of us, fearing that if they come near us or talk with us, they will be selected to become members too! Acquaintances often try to ignore the membership, pretending that it doesn't exist. They seem to think that will make things easier, and then the members won't feel "different," but it really only makes things much worse.
So many times, I have wanted someone to say hello or to tell me she has been thinking of me or to mention something about the absent child who still lives inside me and overshadows all my thoughts. I have heard people say, "I don't want to upset her, or remind her of her son, or say something that will make her cry."
I want to tell them: "The only way you can make me feel worse than I already do is to pretend that it doesn't exist or that it isn't as deep and painful as you surely know it is.
Have you ever experienced the feeling of having one terrible incident go through your mind, day after day, week after week, month after month, wondering why it happened and how you could have prevented it? Well, don't worry about reminding me of my son. I am thinking about him nearly twenty-four hours a day.
"Sure, sometimes my mind is temporarily distracted--it would have to be to function at all. But if you think there is even one day that goes by without my child's death tearing up my heart, then you have no idea what this club is all about."
I appreciate your talking about my child, or at least letting me talk about him. He was a very large part of my life, and ignoring him now will really hurt me. It makes me think that you feel he's no longer important because he's gone. It hurts to think that people don't want to think about him or remember good things about him, just because he has died.
"I understand that you don't want to say anything that will make me cry. That sounds kind, and I used to feel that way too, but now I know better. I'd rather the tears didn't come when you talk to me because I know they may scare you away, or at least make you very uncomfortable. But I've learned how useful and necessary they are. If I go too long without tears, my body builds up a terrible pressure from the pain of the grief. If you will allow me to cry in your presence, perhaps I won't have to cry alone, wondering if anyone else remembers, or even cares, about my loss.
"You can't know what will make me cry--sometimes I don't know, myself. Some days I stay dry-eyed through nearly everything. Other days, the slightest thing will start the tears--things you could not possibly imagine or anticipate. Not all the tears are tears of sorrow. Even in the midst of my anguish, I sometimes cry tears of joy and relief because you have reached out; because you have confirmed that my son was special; perhaps because you have shared with me some precious memory about him which I had not known before.
"Please don't run away from me. Don't pretend his death never occurred, or even worse, that he never lived! I still love him, think of him, need to remember. Please share with me and we will both feel better.
"I am learning that God is not punishing me. He did not cause the death of my son. But, He can help me to grow through this experience--to become stronger and wiser and more caring, if I have some help. Initially, when I was told by a church member that I would change and grow stronger through this experience, I wanted to scream that if it meant giving up my son, I didn't want to change or get stronger. But I know I have no choice about that now--he is gone. Now my choices are to either let God, and friends, help me to become better; or I can choose to allow this grief to destroy me.
"I have to experience the grief. I can't pretend it doesn't hurt, or hurry it along. That's what membership in this club is teaching me. I am choosing to allow God to take an unspeakable experience and use it to start life again...in a new and better way.
--------------------------------------------------------------
I found this on one of the grief websites I visit and it really touched my heart. It says what I'm feeling better than I can...
Donations Update
It is so strange how nobody has even heard of SMA until someone they know has a child diagnosed with it. It doesn't seem to be a "rare" disorder at all. I meet new people online almost every day now who have either lost a child, had a child diagnosed, or have a milder form themselves. It is so sad that a disease that can kill our children before they even get that first birthday cake to play in is so unknown.
If you haven't signed the petition yet, please do so. You are already online...just go do it. PLEASE.
Wednesday, February 25, 2009
Soldier's Angels Update
Tuesday, February 24, 2009
I'll Lend You a Child
"I'll lend you for a little time a child of mine,"
He'll bring his smiles to gladden you,
I cannot promise he will stay,
I've looked this world over
I fancied that I heard them say,
The risk of grief we'll run.
Monday, February 23, 2009
Starbucks and donating!
I went to the Starbucks inside the West Lake Houston Kroger and they are currently taking donations for muscular dystrophy. If you donate, you get a cute clover to write on and a 1.00 coupon for Borden milk. I donated $5 because that's what cash I had with me and the cashier told me I get a free coffee for that donation! SMA is included in the muscular dystrophy category, so hopefully those donations will help some other kids like Eli.
So...go donate and get your free coffee!!! I let the baristas know why I was donating and the lady behind me heard my story and she donated and put Eli's name on her clover. I was really touched by that; it is nice to see the good in others.
April 3rd: Relay for Life
Projects and Donations
My projects are all going well. We are almost finished with the first round of the crab project. I have sent 2 letters to our soldier so far and will be mailing out the first package to him tomorrow. My box for the food pantry is almost full so I will be delivering that soon. I also found a local women's shelter to donate the extra diapers and formula we have, as well as items I pick up free or cheap with my coupons. I have a bag with medicines, make-up, and assorted toiletries to include with the baby supplies.
I'm happy to be doing all of these things, but they still don't dull most of the pain we are feeling right now. I just hope we can keep up our good deeds....it does help me get out of bed, so I am thankful for that if nothing else.
Thanks again for all of the support! We love helping others and I love getting some new people involved!
Sunday, February 22, 2009
Bad Cat?
One of the last really amazing days I had with Eli we sat by the Christmas tree and talked and played for a long time. I was not able to upload the best video because it is too long, but this one was pretty cute too. I miss him so much; I'm glad we bought a video camera so we can see still and hear him.
Saturday, February 21, 2009
I’ll always see your face,
The corner of your smile,
And all the little things that no one will ever know.
Like it was yesterday, won’t ever fade away,
Goodbye is just a word that I will never say.
You will never be forgotten.
A million days could pass us by,
But what is time but just a dream?
Oh, I still feel you here with me.
You’re more than just a memory.
Oh, you will never be forgotten.
I can‘t hold your hand
Or look into your eyes,
And when I talk to you,
It just echoes in my mind;
But If hearts are made of dust
And if we fell from the stars,
I would look up tonight
and know just where you are.
You will never be forgotten.
A million days could pass us by,
But what is time but just a dream?
Oh I still feel you here with me.
You’re more than just a memory.
Oh, you will never be forgotten.
And the world just keeps on going;
It has no way of knowing
That you’re gone.
You will never be forgotten.
A million days could pass us by,
But what is time but just a dream?
Oh, I still feel you here with me.
You’re more than just a memory.
Oh, you will never be forgotten.
by: Jessica Andrews
Thursday, February 19, 2009
I don't know how to live in the "normal" world right now. I can't remember anything, I can't sleep. Nothing seems to be working right. I try to keep up the facade of being okay when we are around other people because I know everyone worries about us, but my ability to maintain it for long periods of time is declining rapidly. I miss Eli so much; I am so angry that I don't get to see him grow up. I always wonder what he would be doing right now. Not having him with us is absolute hell on earth.
Crab Fund Donations
You can just mail checks to our house so we know what money goes to the crab fund. Just please put a note on there that it is for crabs. We are trying to make sure what money we get goes to the place the sender wishes to donate to, so the memo line comes in handy for that.
Our address is
18131 Pagemill Point Ln
Humble, TX 77346
To those who donated to the memorial fund... We are not able to find out who sent money as they set it up to be anonymous, so if you did send money, Thank You. I don't know how else to thank those of you who did, but please know that we appreciate it so much. The hospital bills are slowly starting to trickle in so that money will be used to help out with those.
It is really amazing at the number of families out there who have been affected by SMA. It is very surprising how little is known about it and how most of us have never heard of it until it hits home. I hope those of us who blog can continue to spread the awareness and let others know of this horrible disease that steals away our children.
Again, if you haven't signed the petition, PLEASE do.
Wednesday, February 18, 2009
Great News!
Cooking for a Cure
It will be a LONG process, so we'll see what happens. I'll probably use an online program to put it all together, so I need to see if I can let others have access.... I might need some typing help!
Stem Cell Research
I just hope someone will care enough to fund the research. Our government wastes so much money on issues that are not nearly as important as dying children. If you haven't already, please sign the petition on the sidebar of this page. You can also call your representatives, senators, or just pray that we can one day have a way to help our kids. Nobody should have to feel the pain we are in right now. It is almost too much for anyone to bear.
Tuesday, February 17, 2009
We go through life so often
We never stop to measure
A kiss that is sent from Heaven
For in your pain and sorrow
So when your hearts are heavy
About the ones you grieve for
By Peggie Bouse
http://wrightwaytosave.blogspot.com/
Ready to Make Care Packages!
Monday, February 16, 2009
Sometimes you just gotta treat yourselves....
OUR NEW LG WASHER
AND DRYER!
...and today we did! We usually take our tax return and buy something we've been wanting/needing but didn't want to go in debt for. This year we chose these and I am so excited. It will be nice to have more energy efficient appliances, but it will also free up a room in our house! The cats and their litter boxes took over my craft room when we made the nursery for Eli, so I haven't really had a place to work on my cards and scrapbooks. We are going to have the washer/dryer stacked, so the litter boxes will fit in the laundry room. I have wanted this for so long; it was the one thing that made me decide go to ahead with the purchase. It will be so nice to have all four bedrooms litter box free for a change.I can see you and I love you and I will through all the years
I know you are my mother and none other would I have chose
For even up here in Heaven true love continues to grow.
Daddy I see that sometimes when you are all alone
your eyes get kind of misty and your thoughts they kind of roam
You are thinking of how things would be if I was there with you
all the things you would have taught me and watched me as I grew.
But I still love you my dear parents as if I was there on earth
I remember how you longed for me and looked forward to my birth.
There was nothing you did wrong so please put your minds at rest,
God just wanted to keep me and you know He picks the best.
And one day we will all be together in our castle in the sky
true peace and love and happiness, things money cannot buy
And you can hold your angel and sing me a lullaby
for a parent's love for their children is a love that will never die.
Sunday, February 15, 2009
I thought of you and closed my eyes
And prayed to God today.
I asked what makes a mother;
And I know I heard him say:
A mother has a baby
This we know is true.
But God, can you be a mother
When your baby's not with you?
Yes, you can, He replied
With confidence in His voice.
I give many women babies;
When they leave is not their choice.
Some I send for a lifetime
And others for a day.
And some I send to feel your womb;
But there's no need to stay.
I just don't understand this, God
I want my baby here!
He took a breath and cleared His throat,
And then I saw a tear.
I wish I could show you
What your child is doing today.
If you could see your child smile
With other children and say...
"We go to earth to learn our lessons
Of love and life and fear
My Mommy loved me oh so much,
I got to come straight here.
"I feel so lucky to have a Mom
Who had so much love for me;
I learned my lesson very quickly,
My Mommy set me free.
"I miss my Mommy oh so much
But visit her each day.
When she goes to sleep,
On her pillow there I lay.
"I stroke her hair and kiss her cheek
And whisper in her ear;
"Mommy don't be sad today,
I'm your baby and I'm here."
So you see, my dear sweet one,
Your children are okay.
Your babies are here in My home,
And this is where they'll stay.
They'll wait for you, with Me
Until your lesson there is through,
And on the day that you come home
They'll be at the gates for you.
So now you see what makes a mother;
It's the feeling in your heart.
It's the love you had so much of
Right from the very start.
Though some on earth may not realize,
Until their time is done.
Remember all the love you have
And know that you are a SPECIAL MOM!
~Anonymous
Saturday, February 14, 2009
Randomness
Since it has been a month, I wanted to do something to make me feel a bit better and remember Eli at the same time. My favorite time of year is when the daffodils start blooming and I decided to plant some in our yard. Now when they come up every year, I can think about my little boy and smile.
We hear so much about the negative things the Internet can bring into our lives, but it can also bring some positive things. I have reconnected with one of my cousins on Facebook and got this awesome package of goodies in the mail from her this week. Thanks Kelly! Love ya!
One Month...
__________________________________________________
Baby boy...
Daddy and I miss you more and more every single day. I have been clinging to your bear and blanket as I try to fall asleep at night. I wish with all my heart it could be you that I'm holding, but that can't happen now. It gets harder and harder to accept that you are really gone. I go into your room and all the things we so carefully picked out are still there... I found your Christmas vest on the dryer.... Your Bumbo is still in the corner of the living room. Everything is still here, just not you.
I got Daddy and I tickets to the Astros opening game. I cried and debated on it a long time, but Daddy wanted us to go. I already cry my eyes out thinking about it, but I'll go and think of you while I'm there. I had begged that you hang on long enough to go with me, but I am glad you didn't suffer to do that. It is hard to know you won't be there with me, but I know you'll be watching it with Grandpa Greg and Uncle Shawn.
I hope you like the wind chimes, red bird, and flowers we brought you last weekend. We all love and miss you so much.
Friday, February 13, 2009
Opening Day
Coupon Class
I know the economy is getting pretty rough and several people have asked about saving money, so I am thinking about doing a little workshop type thing here at home one day. It could be on a Thursday or Friday night, or a Saturday morning. Would anyone be interested? I wouldn't charge for it, just ask that everyone bring an item for the Ronald McDonald House, the food pantry, or our soldier. You could also put a donation in the fund to buy Melissa and Doug crabs if you didn't want to go shopping for something.
Did you sign yet?
If you are new to my blog, here is some information about SMA....
Spinal muscular atrophy (SMA), the number one genetic killer of children under the age of two, is an often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing.
WHO IS AFFECTED
SMA is one of the most prevalent genetic disorders.
One in every 6,000 babies is born with SMA.
SMA can strike anyone of any age, race or gender.
One in every 40 people carries the gene that causes SMA. The child of two carriers has a one in four chance of developing SMA.
7.5 million Americans are carriers.
THE TYPES OF SMA
SMA Patients are classified into four types based on milestones achieved at onset of SMA. Type I and II are the most prevalent.
Type I, or Werdnig-Hoffmann Disease, is the most severe form of SMA. Type I SMA strikes infants between birth and six months old. Children affected with Type I cannot sit without support.
Type II affects infants between seven and 18 months old. Type II patients may be able to sit unaided or even stand with support. They are at increased risk for complications from respiratory infections.
Type III, also known as Kugelberg-Welander Disease, is the least deadly form of childhood-onset SMA. It strikes children as early as the age of 18 months, but can surface as late as adolescence. Type III patients are able to walk, but weakness is prevalent. Most patients eventually need to use a wheelchair.
Type IV is the adult form of the disease. Symptoms tend to begin after age 35.
SMA does not affect sensation and intellectual activity in patients. It commonly is observed that patients with SMA are unusually bright and sociable.
Thursday, February 12, 2009
Opening Day
Wednesday, February 11, 2009
Soldier's Angels
Tuesday, February 10, 2009
Donations, Donations, Donations!
For Ronald McDonald House, I have started filling up a bag of their wanted items and saving the pull tabs from my soda cans. If you are coming by the house, feel free to bring an item from the list and I'll pass it on when I take mine there. If you are local and see us on a fairly regular basis, consider saving your soda can pull tabs and encourage those you work with, family, whoever to do the same. They recycle them to raise money for the House, so I'll be making a jar to save those and donate. Again, I'll be glad to add yours in and take them with mine.
Finally, we have a box here for food for the Humble Area Assistance Ministries. It is a rough time for many families and the food pantries really need donations. If you have any dry goods or canned items you can donate, bring them by when you stop in and visit!
I think doing some good deeds and helping others will help strengthen my spirit and help me cope with all the emotions and hurt I'm going through right now. I appreciate any help anyone offers to do these along with me. For those of you who do crafts, I want to put together a night to make cards for our troops overseas, so let me know if you would be interested in doing that and we can get a night set up.
Monday, February 9, 2009
Monday Musings
Sunday, February 8, 2009
The Cemetery
The peaceful cemetery....
Saturday, February 7, 2009
I <3 Vintage Stuff!
Friday, February 6, 2009
Wishing and Hoping...
Ronald Donald House donations
I'm trying to work on collecting items to donate to Ronald McDonald House. If you are interested in helping out, watch for sales and pick up some of the following:
Batteries
Laundry Detergent (liquid)
Xerox Paper
Scotch Tape
Postage Stamps
Disposable Gloves
Ice Tea Makers
Paper Products - towels, napkins, plates, cups, utensils
Travel Size Toiletries- shampoo, conditioner, toothpaste, toothbrushes, razors, shaving cream, deodorant
Fruit - Fresh or individual servings
Popcorn (bag)
Pudding - Individual servings
Ramen noodles
Tuna/Salmon - Individual servings
Breakfast Items - Danishes, muffins, POP Tarts, granola/breakfast bars, oatmeal (individual wrapped)
Snacks - cheese/peanut butter crackers, cookies (individually wrapped)
Baking Mixes (cookies, muffins, brownies, cakes)
Gift Cards - H-E-B, Kroger, Target, Wal-Mart
SMA Testing
Athena Diagnostics Offers Genetic Test for Diagnosing Spinal Muscular Atrophy
SMA Now Second Leading Cause of Infant Death
WORCESTER, Mass. (January 26, 2009) — Athena Diagnostics, part of Thermo Fisher Scientific, offers a comprehensive test to identify carriers and diagnose prenatal cases of spinal muscular atrophy (SMA), a disease that causes the degeneration of lower motor neurons and is the second leading cause of death among infants. With this advanced testing and diagnostic capability, physicians can screen couples who are planning to start a family, or who are already pregnant, for mutation in the recessive SMN1 gene, a genetic variation that will ultimately determine if their infant will be born with SMA.
SMA ranks as the second most prevalent hereditary disease in the world, after cystic fibrosis, and the American College of Medical Genetics (ACMG) recommends that all couples should be offered testing for SMA mutations before starting a family. Currently, one in about every 50 adults, or approximately 7.5 million people, is a carrier of SMN1 abnormal mutations, and, as a result, one in 6,000 infants are born with the genetic disease every year.
Basic carrier and prenatal testing only allow physicians to screen for the presence of an abnormal SMN1 gene. Athena Diagnostics offers comprehensive SMA testing that enables physicians to
take patients through the initial carrier testing, which screens for the presence of SMN1mutations and SMN2 gene copy number count. This insight into the development and copy number of an SMN2 gene in the infant allows physicians to predict the progression of the disease and create a treatment plan before the infant is even born. “Infants who are tested for the SMN2 copy number present in their genetic makeup will allow physicians to be more knowledgeable about the prognosis of the disease,” said Dr. Thomas Prior, PhD, Ohio State University. “In the future, this may allow physicians time to develop a personalized patient plan and start implementing a preliminary treatment strategy. Early diagnosis is so critical, and the Athena Diagnostics test gives doctors that precious extra time to understand the early stages of a disease that affects more families than most Americans realize."
"My husband and I lost our daughter, Claire, to SMA at the age of nine months,” said Deborah Heine, executive director of the Claire Altman Heine Foundation, a nonprofit organization dedicated to the implementation of pan-ethnic SMA carrier screening. “We were never offered the SMA carrier screen despite the fact that a test has existed since 1997. No one should have to discover their carrier status by having their child diagnosed with this devastating disease. It is our desire that all individuals of childbearing age should be offered SMA carrier screening so that they can make informed reproductive decisions."
To learn more about the Athena Diagnostics SMA test, please visit:
www.athenadiagnostics.com/sma
For our more science-minded friends, here are a couple of other articles if you are interested:
The Genetics of SMA
Carrier Screening for SMA
Thursday, February 5, 2009
Wednesday, February 4, 2009
Zoo Pics
One of my favorite parts of the zoo! They are usually in the water but I guess it was too cold for that yesterday.
Wednesday Rambling...
Yesterday was a day filled with mixed emotions. I could have stayed in bed all day. Jason finally managed to get me up and we went to the Houston Zoo. I cried on the way there and a few times while we were walking around. It was the first place I wanted to take Eli when he got out of the hospital so I was sad to go there without him. It wasn't very crowded, but it seemed like everyone who was there had kids and strollers with them. I was upset to see so many kids running around looking at the animals while their parents lagged behind talking on their cell phones. What a wasted opportunity.... A new giraffe was the highlight of the trip; he was born on Friday and was just 4 days old. What a treat to get to see that!
We went to our friends to visit and have dinner after the zoo and it was such a nice evening. I love hanging out with other couples and don't do it nearly enough. They have two beautiful children and it was so great to be surrounded by all the love in their home. They are some of the most caring people I know so it is such a blessing to be able to call them our friends. We watched the movie Fireproof while we were there and I'm still thinking and processing it, so I'm sure I'll have a blog post on it soon.
Tuesday, February 3, 2009
Soapbox...
I would have been so upset to have children watching the Super Bowl this year. First, the players did not represent good role models for any kids. There was too many unsportsmanlike plays and fights. After seeing that, we were then subjected to some of the worst commercials that were in no way appropriate for kids of any age. Godaddy.com has had ads for the past few years and none of them are even relevant to a company that sells domain names. This year things went even further here in Texas; we actually saw an ad promoting ashleymadison.com. For those of you not familiar with this website, it is a website for married people to find someone to have an affair with. So they air this but refuse to air a pro life ad...
While I realize morals and values are almost non-existent in our country these days, I always have hopes that that might change. Many people blame it on the religious right, but I do not put myself in that group and I think I have a pretty darn good set of values.
If you do have kids, skip a few of those extracurricular activities; the most important thing you can do for them is sit down and have dinner with them and discuss the day's happenings. One more soccer game is not going to make that much of a difference, but listening and talking...those are priceless. Watch what your kids are doing, watching, seeing. Most TV shows are so out of touch now days and the Internet can be both good and bad. You have to be the one setting the boundaries and protecting your kids. Don't let technology raise your kids; that's why we are raising a generation of selfish, rude kids who end up having babies in middle school.
I do know that there are more good people out there than I realized. While going through all that we have been through over the past month, I have felt so loved and supported. I had given up on most of the world, thinking nobody cared about anyone else anymore. I was wrong. There are still many of you out there and I thank you. Please pass this caring attitude on to your kids. Let them see you giving and loving; get them to help you out now so they develop a kind, loving spirit. Thank all of you who have reached out to us. I hope I haven't offended anyone, but things are just getting so out of hand in this country and I fear that it will only get worse from here....
Monday, February 2, 2009
6 months...
Today would have been your half birthday. I can't believe we didn't even get to have you with us for six months. I feel so cheated and your dad and I miss you so very much. I never realized how you had taken over every aspect of our lives in such a short time. Most days we aren't sure what do without you here to keep us busy. We can't seem to find things to fill our days and end up sad and missing you.
I miss so many of the little things... I miss how you woke up a little grumpy but quickly turned into such a morning baby. My favorite part of the day was putting you on the changing table and unswaddling you...you always streeeeeeetched those arms out, ready to start your day. I LOVED that and it always made me smile. I miss the smiles you gave us when we would have to change your diaper. If nothing else, we knew we would get some smiles during that time. You had the most beautiful smile; it would light up your whole face and shine through your eyes. I miss getting up and seeing you with your arm out of the swaddle, all upset and not sure what was going on. I wish more than anything I could hear you talk and laugh again; I would even settle for a cry.
I miss watching you and daddy play together. You made me fall more in love with your daddy. He was such an amazing father. I couldn't wait for him to get home and play with you so I could hear you giggle. You always saved those giggles for him. It breaks me heart to see daddy missing you so much. He sure did love you little man.
Even though we have been struggling, I will keep my promise to you. It is just a little tough getting used to life without you. You were such a special baby and you left a huge void in our lives and hearts. Momma still has you close in her heart and I love you so much.
Sunday, February 1, 2009
Superbowl Sunday
Update:
We were cheering for the Cardinals...as was everyone here. I didn't really have a love of either team, but picked them because my baby boy loved red. :) For those of you who didn't get to meet Eli, I thought I'd share a cute story with you.
One Sunday evening Jason and I were watching football and Eli was just hanging out in his bouncy seat. We started to notice that he would cry when the game went to commercial, but would quit when it came back on. He loved football. We really figured this out a few Sundays later. People were over trying to talk and play with him and he would cry if they blocked the TV. He wanted to watch the game! He was our little sports buddy already. We told him we would have a Super Bowl party, so we did... I hope he was here in spirit to enjoy it with us.