Before falling asleep last night, I went back and looked at some of the petition signatures from January and February. I had another SMA parent ask me if I was spreading the word about the disease. I try, but that's one of those questions that hurts me a little. I never feel like I'm doing enough to get the word out. Every time I see another baby die, I wonder if there was something I else I could have done to help stop SMA claiming yet another life. I needed to look back at the petition and see that yes, I had made more people aware.
Many of the names I saw made me cry. Some of those who signed in honor of Eli I don't know personally. I am sure they were some of the amazing ladies from the pregnancy message boards I visited last year or some of you who visit me here. I saw my brother's name, a few cousins, and some friends and former coworkers. I noticed some people who had obviously been recruited by a couple of my amazing friends who continue to work on getting signatures even now. It makes me sad that there are millions and millions of people in this country but we can't get 100,000 signatures on the petition. Have you signed yet? Are there friends on Facebook or through your email that you can ask to sign too? If so, please do it in honor of my Eli. Help that beautiful little boy continue to make a difference. I need that to happen, more so now than ever before.
Thank you to everyone who keeps coming back to visit my blog. I know I'm not Miss Sunshine and many of my posts are angry rantings, but I have to lie enough in "real" life; let me have this one place to be me, the angry hurting mom who would give anything to hold her son again.