Thursday, July 30, 2009

Just when you think things might be getting a little easier...

This week is horrible. I feel like any progress I've made in "getting better" has gone away and I'm back at square one. I had already had some plans to celebrate Eli's first birthday, even before he was here. I miss those plans; I miss him. Babies are adorable covered in icing and I won't get that. I guess I can add it to the long list of things that make me feel cheated. It is a list that will continue to grow until the day I take my last breath. No first day of school, no first date, graduation, college....

I hate SMA.

Please join us at the walk if you can. If you can't make it but want to donate, we do have a PayPal account for througheliseyes@gmail.com or the address to mail a check is on my sidebar. We will find a cure for this horrible disease. If I have to go back to school and learn more DNA/genetics stuff and do it myself, I will.

My thoughts continue to be with Jennifer and the rest of baby Ryan's family as they say goodbye this week. I wish I could be there to give her a big hug. I also have a friend from Facebook, Angela, who lost her little Cisco, Jr on August 2nd of last year. She is never far from my mind either. Much love to all my fellow SMA mommies.

3 comments:

Lucy and Ethel said...

I'll be eager to read that the walk was a HUGE success! It won't make the tough times disappear, but it will help you to know so many are thinking about Eli... and YOU.

Hugs from NC -

Helen

Murphy's Law said...

Hi Rita,

I always felt that it was so emotionally trying during those weeks and days leading up to the birthday or the anniversary. Once that day is behind you, I hope you will find a little peace and be able to keep moving forward, as hard as it is.

Chin up, my friend. Love you.

~L

Angela said...

Much love to you Rita!!!