Thursday, July 30, 2009

August is National SMA Awareness Month

August is National Spinal Muscular Atrophy (SMA) Awareness month and we are excited to be moving forward in both understanding and developing potential treatments for this disease. This is the time to come together with your communities to raise knowledge of the disease to new heights.

Awareness is the beginning of change. The majority of people do not know about SMA until it directly affects their family. Even the letters SMA don’t ring a bell with many doctors, nurses and community members. This is where you can help.

What you can do:
Plan to get involved and spread awareness of Spinal Muscular Atrophy with the Materials here. (You can download these materials or call the FSMA office at 800-886-1762 for printed materials.)Click here for additional awareness materials.

Grass-roots Efforts are the foundation of this campaign. Whether organizing bake or craft sales or setting up candlelight vigils to honor the children who have died, there are many ways to take proactive steps to help Families of SMA raise awareness to help find a treatment and cure.

ALSO: "Honor your SMA Angels"Join with families and SMA organizations around the country by lighting a candle at sunset on the second Saturday in August to remember and honor those who have lost their battle with SMA.

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