Please remember our Family 5K will be this weekend at 9am! It is at Deussen Park Shelter #9. You can bring yourself, spouse, kids, grandma, neighbor, etc. We just ask that you bring a snack to share, some travel-size toiletries for donation to Ronald McDonald House, or a donation to Through Eli's Eyes.
My parents will be attending the SMA walk in Kentucky next weekend. I am so proud of them! Jason and I will be trying to make them some T-shirts to wear to honor Eli up that way.
Some good news out of the SMA community is a recent research article that talks about a possible treatment! How exciting is that?
Finally, I got up this morning to find that baby Ryan passed away last night. I've been reading Jennifer's blog every day so I knew it would probably be this week that I would be typing out these words, but it doesn't make it any easier. I hate seeing the babies continue to die. I hate feeling so helpless to make it stop. All I can do is continue to do what I'm doing and hope it will make a difference to someone.