Tuesday, April 28, 2009

Just a little vent.

Today is a day of frustration for me. I've been trying to do a few things to help raise money for SMA research, but it is all getting very discouraging for me lately. I really want to start my own nonprofit so I have an actual name and organization to do my projects under. Without that, I feel like I'm useless to do very much. The cook book I've been working on is going to cost me a lot of money to print. They give organizations enough time to sell the books to pay for the printing costs; individuals must pay before they are printed. So, I could possibly ending up sending a few thousand dollars and have a room full of unsold cook books. I have no idea how many to get printed or how "fancy" to make them. I don't know how to talk people into putting in ads or how to design or submit the ads.

I wanted to do another fundraiser around Eli's birthday, but the 5K fun run we were looking into really needs to be done under an organization name. My friend Kim has a great alternate plan, but again, we will see how it goes.

I just feel so helpless to do anything and these projects sometimes make me feel that I'm at least doing SOMETHING. I know it is not much, but it is SOMETHING. I feel like I'm at a point that I can either spend my money for a lawyer to help with setting up a nonprofit and have none left over to do projects OR do the projects but keep encountering obstacles. Ugh.

That's my vent for the day. Sorry. Just a frustrating week for me.


Anonymous said...

Your story has touched me so much and lead me to many other families living with SMA. I pray for you all. For the adds...If companies purchase them, they may already have a design to submit. Perhaps if you talk to the Children's hospital or the Ronald McDonald House they know of families or sponsors that may like to help. Other SMA families employers may wish to buy adds. Friends of SMA children may like to purchase adds on behalf of their SMA loved one. You have been through so much and have such a great heart I hate to see you suffer and face setbacks. You can and will do it. And we will find a cure for SMA. Thank you for making me aware of this so I can spread the knowledge.

Anonymous said...

How about having people pre-pay for the cookbooks? I know that I am going to buy one no matter what, so if you raised the money that way you wouldn't be taking so much of a financial risk getting them printed. Just a thought...