Do me a favor... If you have a young girl in your life who loves wearing bows, please consider buying one from Gina at Larkie Lu Bows. I found her website today and I hope I can send some support her way. Her daughter has both Down Syndrome and SMA and she makes the bows her help support her family; she also donates 10% of her sales to FSMA for research.
Blogging is one way to raise awareness of SMA and to support those who try to help fight against it. I feel it's important to pass along websites like these to help out parents who have kids with this horrible disease.