Sorry for the lack of recent posts...just been a strange time here in the Beasley-Wright house. We haven't had much going on lately, so not much to report.
We are getting ready to kick off a big fundraising effort soon. We have been asked to try to raise $5000 by January to help support a very promising clinical trial for a possible cure for SMA. We would love to have people from all over the country join in and help out if you could. This research effort could be the fix we have been waiting on, but without funding, it will not be possible. If you have any ideas for fundraisers or would like to do something to help us meet our goal, please let me know. Hopefully a few of you can spare a weekend day to host a bake sale or a lemonade stand to help the best cause ever...saving babies! I'll have more information and a website to send in the donations once the details are all worked out.