Monday, December 29, 2008

Update 12.29

We were given bad news today. The neurologist thinks Eli might have Spinal Muscular Atrophy. They are going to do genetic tests on him, which will take 4-6 weeks to get results back. I'm not even sure what to do or how to react at this point. Please keep us in your prayers.

2 comments:

Anonymous said...

we will keep you in are prays Rita.

Jana Gundy said...

as a mother of a now 4 yr old sma type 1 boy who was diagnosed at 6 weeks of age, I wanted to let you know there is hope and help out there. I live in Tulsa, Oklahoma, but I know of some sma families right there in texas that are very nice and helpful. If you need to talk or have someone understand, we are here for you all.
Jana Gundy, mother to Kyle James
www.oursmaangels.com/kyle
918-812-7092
jana.kylesmom@gmail.com