Update 12/30

We are still pretty much in the dark about things. Today should include a MRI scan, as well as placement of a feeding tube so he can get some nutrition. We are really pushing for him to go home soon. Most of the testing is complete; they will be drawing blood to do 2 more of the genetic tests this evening, leaving one more blood draw for tomorrow. We are hoping to do things on an outpatient basis rather than staying here in the hospital. They are not really able to do anything to treat him at this point, so once the feeding tube is put in we should be able to take him home. Please keep praying for us. We will have a long wait on our hands that will require a lot of support from our friends and family.